Only one nipple of her nipples will become erect at a time. For a stint, they were both inverting and this is very abnormal for her (they always protruded before). She also has periodic itching in her vulva, but has tested negative for all STDs.
She can no longer have orgasms, whereas she has them readily before by clitoral or vaginal simulation. She says she has little to no feeling in her vagina now. This has been going on for 2 years and all doctors have been unhelpful with their diagnoses or lack thereof.
She was on birth control for a month. Could this be the culprit, or something worse? She has all but given up hope. I love her dearly and want her to be well, full of the vim and vigor she once was. Please help, if you can. We would be eternaly grateful.
HerHuggyBunny, thank you so much for your concern and compassion! I neglected to mention that in fact, she has had periodic tingling in her extremities, but she did undergo a neurologic exam and MRI (brain) and they ruled her neuropathy/paresthesia idiopathic (no known cause). We don’t think it’s MS. She has anemia, thalassemia to be exact, but it has never been problematic before now.
Lisa C, Thank you for your good wishes. She is twenty-one years old. She has apparently exhausted all of the standard testing, hormonal blood testing included.
She has never been on antidepressants of any kind, nor has she had any surgeries. What she did have, however, around the time her symptoms started to appear, was a single Gardasil shot.
She has sensation (she can feel fingers down there), but none of it is pleasurable. She also had a longtime bacterial vaginosis which was never accounted for and a disrupted vaginal PH.
We will beseech the help of a urogynecologist, and ,failing that, a sex therapist. Thank you so much for all your suggestions.
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January 15th, 2010 at 3:43 pm
I’m going to say something awful here.
Sit down, man.
This doesn’t sound like "sexual dysfunction" at all.
While it *is* remotely possible that this is an extreme side effect of hormonal birth control, I seriously doubt that. It sounds like "neurological disturbance".
I’m not kidding. She needs to describe every single thing to her doctor and *insist* on a full neurological examination. MRI’s of brain and spinal cord if necessary after that.
*Please* email me (see my Y!A profile) if this disturbs you and you’d like me to explain or help.
EDIT: "thalassemia"
Ah. That explains things much better – thank you huge for speaking about this… I’d have worried all night over her.
My own stepdaughter once (age 13) had a very distressing episode of vertigo and diplopia – only a few months after my own MS diagnosis – and despite my understanding intellectually, I couldn’t help feeling like I’d *caused* this in the poor kid.
I know some (but not a lot) about thalassemia. The problems you noted *are* very possibly neurological then, and (at least in the simplest cause/effect way) iron-related in some ways… or maybe not. :-\ (I know that’s not helpful, but it’s true.)
The other answer below mine (I see you’ve already responded) is a *very* good armchair-analysis fomr a whole different perspective, and I’m glad you’re going to follow up on that. She might be right some things.
Please make sure your GF gets all of the medical help she really needs… thalassemia is genetic and can’t be cured, but just like MS, it’s had some treatments developed that work pretty well for some people.
January 15th, 2010 at 3:43 pm
Check with a urologist doctor..for the itching in the vulva, probably a yeast infection, try wiping with a solution of white vinegar and water twice daily …..as vinegar will kill anything
January 15th, 2010 at 3:43 pm
I am sorry you are both going through this. You don’t mention how old she is, so I don’t know if she’s going through the stages of menopause or not. I doubt a month’s worth of birth control pills would cause long-lasting anorgasmia. Are you certain she’s on on an antidepressant, because those are known to cause sexual problems? And you are sure she’s not had any surgery where nerves could of become compromised. Did they perform an internal ultrasound on her to make sure nothing unusual showed up? Has she truly lost sensation, and does she have any problems with urination or back problems perhaps compromising nerves? If it’s strictly a matter of sexual functioning, and not a hormone problem discovered with blood tests, I do hope she’ll seen a urogynecologist if a gynecologist was of no help. I would want to make sure this wasn’t an issue with her nervous system if these docs rule out a urological or gynecological issue they can see. I don’t know what to say about the nipple issue. Part of me wonders if she may have vulvodynia, but then again you don’t mention her complaining of pain. In the end, if there’s no evidence of a physical problem, perhaps a sex therapist might help. If there’s any pain or any urinary issues, she can always see a specialized physical therapist. Good luck to both of you.